Category Archives: MS treatment

Base 10, MS Style

Truth
Truth

All of our numbers are base 10, and evidently my perspective is too. There are just times when 10 seems a world bigger than 9. I never feel like I am sick and take a lot of medicine. I know my MS meds cost a lot, but I never think of myself as taking a lot of drugs every day. My system is simple. Only one bottle moves to tell me the last pill I took, and I chuckle every time the nurse asks if I miss doses. No, I don’t forget doses. The pain is a good reminder system. See? It is simple, so I can not be that sick, right?

Then this week, I started a new medication which pushed my daily count to 10. I never count pills taken for unusually high levels of pain because I rarely take them, and it kept the daily med count to the single digits. I find it humorous I should have such a hang-up about the 10th pill. I thought my hang-up would be over it being an anti-depressant, but my self image is more at odds with the 10th pill than depression. I don’t feel sad or melancholy, at least not beyond reason for what life throws.

Don’t get me wrong. I still take all 10 pills. How could I not take them and still look A in the eye when I tell her she has to take her meds. She takes 15, and it’s not like that is the highest number she has had to take per day. I continue to use my kids as role models even if traditionally it is the other way around. None the less, I still cringe as the new drug plays havoc with my stomach while I get used to it. It is all part of the evil of the tenth drug.

I wonder if 10 is a big number for an MS patient of eight plus years? It feels like a big number to me.

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Problems With Our Approach to Knowledge of MS Origins (part 2)

Help!  I'm Melting!
Help! I’m Melting!

2. In the The Black Swan, Talebin tells of a thought exercise which I think may shed some light on another cause of our difficulty “Knowing MS.”

When asked which I have better knowledge of, the future or the past, I answered the past because I cannot accurately predict the future.  Who can? For the purpose of the exercise, imagine a cube of ice placed on a kitchen counter.   If left alone for 2 hours, what will the cube look like?  Now imagine an intricately carved miniature ice sculpture of a swan made from the same amount of water as the ice cube.  If left alone on the counter for 2 hours, what will it look like?  I feel fairly confident in my ability to predict the future in this scenario.

Now I imagine coming home from work and finding a small puddle on my kitchen counter.  How can I tell the shape of the ice which made the puddle?  My ability to recreate the narrative describing how the puddle came to be accurately enough to tell the shape of the ice is severely limited.  I will take this one step further.  There is no puddle on the counter.  However, I can not answer the question to describe why the sponge is wet?  My ability to know the past is horrible.

Multiple Sclerosis means more than one cut.  With only this information describing MS, is the determination of cause an easier task than coming home and answering the question of why my sponge is wet?

Beginning of Post:  http://thelifewelllived.net/2013/11/26/problems-with-our-approach-to-knowledge-of-ms-origins-part-1/

Thought 2: http://thelifewelllived.net/2013/11/26/problems-with-our-approach-to-knowledge-of-ms-origins-part-2/

Thought 3: http://thelifewelllived.net/2013/11/26/problems-with-our-approach-to-knowledge-of-ms-origins-part-3/

Conclusion: http://thelifewelllived.net/2013/11/26/problems-with-our-approach-to-knowledge-of-ms-origins-conclusion/

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