The Life Well Lived


On our first date, I asked my now wife how her life would be different in five years if it went as she would wish.  She, being a pediatric nurse at Hopkins, said she would be a foster parent for medically fragile children.  Five years after our first date and having been married for two years at that time, we took in our first foster daughter whom we later adopted.  Her history includes five heart surgeries, a stroke, and numerous other medical incidents.  We took in a premie/shaken boy a year after our foster daughter, and we adopted him too.  Finally, we took in a premie blind girl whom we adopted in 2015.

As for me, I am a 40yearold project manager for the U.S. Census Bureau.  I have had Multiple Sclerosis for the past ten years, and I have taken Tysabri to treat it for the past eight and a half years.  When I started Tysabri, I did so knowing the risks included brain infection and possible death.  Still the decision was “Give me five good years over thirty crappy ones.  If there is some terrible side effect down the road, let it be a road well traveled.”  For all our medical trials, ours is a very lucky family and the road, while bumpy at times, is beautiful.  You have found us at


102 thoughts on “The Life Well Lived”

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    1. Thank you. I am trying to document some of our family’s experiences and thoughts on medical research I come across.

    1. I am most definitely not famous. Few people find their way here, and that is fine with me. I write because it forces me to think differently about the world as I experience it. It gives me a way to go back and review some of the events in our family life which may or may not have seemed important at the time. Thank you for your kind words.

    1. Raising five kids with disability is a good blog about raising sick kids. Wheelchair kamikaze and my new normals are great MS blogs. I hope this covers the subjects in which you are interested.

    1. I’m glad you like it. Where are you from? I see your link, but I do not recognize the language.

    1. Thank you. I am writing more, but recent events have robbed me of time and energy to write. I am trying.

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  8. Hi, Geof. We are so glad we stumbled on your website through your comment on My New Normals. We really enjoy your writing, and you have such great stories to tell! You have a valued perspective through your life with MS (something we both can relate to!). We look forward to reading more from you, and we wish you a very happy and healthy 2015 🙂

    1. Thanks. I love that blog and the perspective she takes. Even writing for primarily for me to organize thoughts, I don’t know if I could be as open as she is with her emotions. I have a much easier time writing about what I think is happening than what I feel. Frequently, I find the comments on her blog as enlightening as her posts. I went over to your site, and I can totally understand the regrets for things left undone in fear of MS. I keep living by the words from the song in Rent, “How do you feel today? How do you feel today? Best all year!” (rough paraphrasing)

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    1. The two which come to mind are wheelchair kamikazee and mynewnormals. Both are blogs by patients with MS, though with wheelchair’s case it may be that or something else like progressive MS. They are both very good blogs.

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    1. I have been blogging for about 5 years, but only a bit over a year at this address. Before I was at, but I decided I wanted to own what I write. For me, writing is an exercise forcing my mind to slow down and try to look at things from a different perspective than the one from the break neck pace at which I live day to day.

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    1. I haven’t hit any problems thus far. I use both a PC and a MAC when writing, depending on where I am. I figure if it works on both those platforms, I don’t need to worry about others. Since I primarily write for me and my family, I don’t spend a lot of time worrying about how it transfers across other mediums or browsers.

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    1. Thank you. I am no expert. I try to run/write for the blog as a hobby. I just incorporate things from other sites which I like when I know how to do it.

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    1. Anyone can comment, and if it is not spam, it will be posted. I love to see comments, but I do not have guest bloggers/writers. This blog is the story of my family. That said, I could see allowing a guest MS blogger or foster care/adoption blogger as those experts have “skin in the game” too in terms of topics I think/write about frequently.

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    1. Thanks for the comments. I saw a few of your replies to this post. Sorry, I do not always approve comments unless the links pass my web filters, so it takes me a while to get around to reviewing them all.

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    1. ALS is a frightening disease. My favorite MS website is which was started by a guy whose brother died from ALS. Meeting him and seeing his efforts to improve research methods by recentering them around the patients’ experiences and outcomes was inspiring.

      As for writing a book, I am afraid I am too all over the place in subject matter to bring it all together in a single story. I still think about it from time to time, but the truth is I enjoy writing about our lives and what happens weekly too much to put that effort aside for all the time which would be needed to organize/edit a book. Thanks for the compliment to think I could write on that scale.

    1. You are welcome. All of my replies come from my email address,, and I try to reply back to non spam emails as time permits. I also try to reply back to comments on here which seem more than sales pitches or spam.

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    1. I have been blogging off and on for roughly 7 years, but in the past couple of years, I have been trying to write something weekly. It is as much a thinking exercise as a catharsis forcing me to look at what is going on in our life on any given week. I write mostly for myself, but I love thinking what I write might be interesting to others. Still, my expectations are low because I rarely have time to seriously edit as I should if I were to write for others. It’s just a fun, needed exercise.

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    1. Thanks for the comment. I have blogged off and on for years, but roughly 2 years ago, I picked it up again and have tried to post regularly.

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