38-50-17 : No Mid Life Crisis

As I had my 38th birthday last week, the combination represents both a “gift” of MS and why I hate it.

If 38 years is 50% of my life, then I will live with MS for 46 years.  Since I have had MS for 8 years, that would mean I am 17% way through my story with this disease.  I can’t lie.  The thought of 83 percent of the progression being still in front me of me is daunting and intimidating as hell.

Still, I guess some men my age have a midlife crisis.  I find I am OK with the thought I might be half way through this life.  Don’t take this to mean I want now to be more than half way through life.  I’m not done living.  It’s just on tired days like these, I don’t feel threatened by the prospect of being in the second half of my life. 

Maybe I should play these numbers in the lottery this week.

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On the funny kids’ theology front, this weekend sitting at our table eating lunch, my son asked me what language God speaks.  I had to check myself from giving my sarcastic “English of course.”  Instead I answered as honestly as I could, “I suspect God speaks two languages, Love expressed in actions and math.”

He said “Math?  Why math?  Who speaks in math?”  I’m still surprised how readily both O and A accepted the “love” answer.

“Think about all the things we explain with math.  We can explain how fast an object will fall from our hands.  We explain how many days there are in a year or number of seconds in a month.  We can measure all of the world around us, and we explain it all with numbers.”

My daughter then chimed in, “I thought God speaks in miracles.”

“Maybe he does.  Still, think how a man brought 1,000 years into the future would react to a trip inside our house.  Imagine his amazement when I flipped a light switch and the half globe on our ceiling lit up the room.  Can you imagine his reaction to a talking box with picture of people moving on its surface?  Might he think we can do great magic?  Man has used the terms ‘magic’ and ‘miracle’ for thousands of years to explain what we don’t know.  Maybe God does miracles, but none of this says how he accomplishes them.  So I stick with math as the basis of science as the most probable answer to his preferred mode of communication. However, this is all a guess on my part.”

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Global Forum on Innovation in Health Professional Education

Last week, I was lucky enough to attend a two day workshop/conference at the Institute of Medicine of the National Academy of Medicine.  I have to confess after looking at who was attending, I was a bit intimidated wondering what I could contribute.  After all, I was there as a patient, and there were health professionals from all over the world.  I came away feeling like I had learned a ton I never would have guessed about healthcare and feeling like I had contributed to quite a few of the conversations both from the patient and project management perspectives. 

As the second day was ending, I wrote down a few of my take aways:

1) The most surprising stat I heard through two days was 70% of errors in healthcare come in handoffs of care. The reasons are many, but I keep thinking a lot of them could avoided.  From an outsider’s vantage, it seems a lot of these errors could be avoided if there was an easily accessible way for healthcare providers to see the rest of what was going on with the patient’s medical care.  Of course, there are probably some structural problems within our system making it harder.  For example, if we had a single coding/billing system for all medical procedures, maybe it would help. 

I know the Census codes businesses using an 8 digit code with the first couple of digits expressing the sector and each subsequent digit getting more descriptive.  Could a similar system allow for quick browsing of a medical record to quickly see current treatments?  Of course this improvement would be most useful if the record were portable and/or available for the entire healthcare team of patients

2) When it comes to considering changes in healthcare and healthcare education, insurance companies should probably be at the table because they probably have the most inclusive view of the system. The funny part of thinking this during the forum was talking with a representative from United Healthcare over the weekend.  It turns out they are in the process of trying to come up with a coding system to account for all healthcare procedures, even in areas they do not cover like dentistry.  I was happy to hear this as I was about to propose “somebody” needs to come up with a system. 

3) In a related thought, I think insurance companies need to come up with a way to reimburse healthcare providers for services provided outside the traditional office/hospital visit model.  I know how important it is to me to have a neurologist willing to answer emails.  When I’ve asked him about how it is billed, he’s told me he is OK because his is a salaried position.  Still, from a billing standpoint, isn’t our email a more efficient way to handle every day questions medical problems?  How many more healthcare situations could be handled with less overhead?  Many of the best doctors are providing their services outside the standard models.  They need to be encouraged to continue.

4) These non-standard ways to provide healthcare speak to a need to better integrate patients’ needs and experience into the shaping of healthcare policy.  Patients are ever more connected.  We read more about our conditions and healthcare.  While this can give us vital information allowing us to track more of our condition, it can also lead us down many dead ends.  Quite simply, we often don’t know what we don’t know and often what we don’t know is the all important context. 
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5) This thought leads to how knowledge should be gained, and it is not a question limited to patients.  The session going over changes taking place in health education were some of my favorites.  The traditional model of advanced education is based on people in seats, but it is under attack from various on-line services.  If Stanford is teaching on-line high school, and many colleges are offering ever more on-line course work why should anyone assume medical school will always be taught in class rooms?

When I think of my job and all of the people we have hired out of college, I know we always have months before they are up to speed.  I know many of the healthcare professionals at the forum were expressing similar experiences.  The schools are all there to teach towards the exams.  I know we all expect a broad base of knowledge from our doctors, but does the discrepancy between what is encountered with real patients and what is on the exams speak to a fundamental flaw in our healthcare education model. 

I tend toward the “no” camp, but I recognize my own bias having graduated from a traditional college.  While I use little of what I learned there, I think the value of traditional education is learning how to learn and more importantly how to question.  The base knowledge is the important launch point, and it’s my hope medical schools still provide the base for our nurses, doctors and other health professionals to make informed readings of new information.  They need the context we patients lack.  What is less clear to me is whether the class room is the best medium for conveying the information in all situations. 

6) All of this lead to what seemed a general consensus there should be some general metrics to assess how current healthcare providers, their teachers, and institutions in general are in terms of their knowledge of current best practices.  These metrics might better inform us which methods are most efficient.

I can not say how thankful I am to Patientslikeme.com for suggesting my name and getting me invited.  I was planning on taking a couple of days off to go, but it turned out to be an incredibly stimulating way to spend a couple of furlough days.  I would also like to thank all the people who invited me to the forum.

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