Category Archives: right question

Massive Pharmaceutical Cost Increase Seems Imminent

Are Pharmaceuticals forcing us to choose between our health and our country's financial health?
Are Pharmaceuticals forcing us to choose between our health and our country’s financial health?

A few weeks ago, I wrote about how patients, insurance companies, and pharmaceutical companies are seemingly on a path towards spiraling drug costs which have the possibility of sinking the U.S. healthcare system (Everyone Acts For Themselves). The day after I wrote that piece, Senator Ben Cardin was taking questions from people at a town hall-style meeting at my work. When nobody wanted to be the first, I stood up and asked him, “Given the higher drug prices for chronic conditions are consistently being placed on a higher copays tier by insurance companies and pharmaceutical companies are paying some of these to preserve the patients’ access to the drugs, does congress have a plan to slow the incoming onslaught of higher costs?” I then gave my Tysabri example and some information on the new drug to cure Hepatitis C.

After some filler while he composed his thoughts, he said Congress is actively monitoring prescription drug costs, but at this point there is little momentum behind any fix as the various stake holders have a lot of influence to kill any proposals. Yikes.

Hepatitis Impact on Medicare

This week, we got some information on the impact of the new Hepatitis C drug on Medicare. Last year, Medicare spent $4.5 billion dollars to treat Hepatitis C, and the drug was not available all year long. Keep in mind, Medicare spent $286 million on the other older Hepatitis C drugs in 2013. That is a huge increase, and potentially it will grow fast. With 350,000 Medicare beneficiaries believed to have hepatitis C, if they have access to Sovaldi which costs $87k, Medicare is looking at a potential liability of more than $30 billion.

This is only one condition.

These numbers are just for Medicare, not Medicaid or private insurance. According to the CDC, there are approximately 3.2 million people in the US with Hepatitis C. Even if the new competition with Sovaldi cuts the costs in half, we are talking about $139.2 billion dollars to treat one condition.

At some point we will have to change the question from “can we” to “should we.” We need to make sure we are answering the right question. To me, the natural follow-up is if we can but maybe should not under the current system, do we live with the answer or change the system? There are a lot of methods to change the system which might work. My current favorite is the changing of patent law to allow the U.S. government to buy any patent for X dollars. It would have to be a lot to avoid stifling innovation, but what if the U.S. reserved the right to buy a patent for $10 billion if its importance was deemed in humanity’s interest? Could the U.S. then partner with other countries to share the costs of moving an innovation straight to generic with the world benefiting?

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Could Versus Should, The Unasked Question

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Last week, I was interviewing, and I was asked a question for which I should have been

prepared.  Of course saying this, I realize the question is one politicians, medical professionals

and the rest of the country have been trying to answer for years, so it’s not like I expect to have

the perfect answer.  After the interview, the question stuck with me to the point where I wrote

back to the interviewers thanking them for the interview and the question which had stuck with

me after the interview.  The question is one I still find myself mulling almost a week later.

“If you had a magic wand, how would you fix the healthcare system in America?” 

 

After thanking the interviewers, I wrote this:

 

As I was going home and then later putting my kids to bed, I was thinking about the question how would I use my magic wand to fix healthcare.  While I still stand by the answers of single payer and/or universal billing system as helpful to improve aggregate societal health, it occurs to me I failed to mention fixing a large part of the problem.  These are potential band aids, but they assume many decisions stay constant.  As a society we are loathe to talk about the beginning and ending of our lives.  Sex/birth control is a taboo topic and so is death.  With our reluctance to talk about these issues as a society, we all too often fail to ever come to grips with the questions of “should.”  We instead focus on the questions of “can.”  If we can, then we should is the assumption.

 

“Can we save this limb / life?” is the question we ask instead of “Should we save this life or limb and at what cost?”  I saw this when a 21 year old friend was pinned against a guard rail by a car.  She is at the 6-month post accident point, and it is still unknown whether she will ever regain use of the leg.  For less money and pain, she could be using a prosthetic and well on her way through rehab, but the assumption was they should try to save the leg because it may work.  That was how it was presented to her despite at least a 50/50 split amongst my medical friends who say they would have wanted their own leg removed.. 

 

As a society, we do not often ask what the costs will mean for our families or society.  I doubt any of my children’s birth parents ever gave a moments thought to how much the state of MD would pay to keep their children alive and later raised.  I am personally glad they did not.  However, with such a huge portion of the cost of healthcare being accrued in end of life care to prolong life for such short periods of time, at some point society will need to come to a point where we can at least acknowledge the costs and trade offs implicit in our choices or refusal to make choices.  At some point, we need to come to a point where “should” is not simply implied, and a conversation can take place.

 

I would never imply there is a universal correct answer or formula, but if I could wave my wand, I would at least get us to a point where we could talk about what our choices really imply in terms of trade offs.  Is saving my productivity for a year worth more than the cost of a college education?  Is keeping grandma alive in a coma from which she will never wake worth more than keeping a soup kitchen open for the same amount of time?  Should we use stem cells to prolong life?  Perhaps someday we will be able to bio-engineer our systems to be resistant to certain diseases, but should we do so?

 

As I think about the question of fixing our healthcare system, I am beginning to think my assumptions in our conversation were a bit misguided.  A lot of what is trending wrong happens well outside our traditional doctors’ offices and hospitals.  I also recognize much of this is outside the scope of the board except to say the presentation of the trade offs and respecting of patients views of their own trade offs is vital for any doctor.  When I think about what I like most in my neurologist, it is not just that he answers emails.  He has also never second guessed my willingness to take the riskier medications to prolong the time I can maximize my efforts to raise my kids.

 

In any event, thank you for giving me the questions to let me better phrase what I value from my doctors. 

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