Category Archives: perspective

Learning How to See Family

How does your child see you?
How does your child see you?
When it comes to perspective, I am not sure there is a single perspective more powerful than how we ourselves. However if there is one, I bet it is how we think others see us. Do they see all of our failings or our strengths? Do they see us as worthy of love?

Over the weekend, J and I took a hit in the how we think we are viewed by our kids. Our son,O, ran away. It started off as his usual morning defiance, riling up his younger sister and refusing to do the normal morning routine. He thought we would chase him down and force him to do it. So when I told him I had our foster baby in my arms because I was feeding him and there would be consequences if I had to go get him, he said “Make me.” After another minute of him dancing around, I put down R, and I went to go get him. He was waiting by the door which he opened with a smile towards me when he knew I could see him. He ran out into a down poor of rain. I texted J, and we thought his attempt to get attention shouldn’t work. He would come right back. After all, he wasn’t even wearing shoes.

He did not come back. He ran and 20 minutes later while J was out looking for him, he got into a stranger’s car. He told them he did not want to come home because his mom “mistreats him.” He was so lucky, because the older couple took him to the police station. The woman fell carrying our shoeless son into the police station treating him like the brave abused boy he was portraying himself. The cops heard he was “mistreated at home” and there were two other girls and a foster baby in the home. The cops took him to the hospital for an exam and to take photo’s of the bruises on his body as evidence of his abuse.

Of course by this time, I have called the police department giving his name and description trying to get their help to find him. After we had heard nothing for another 30 minutes, I called them back. They said a car was in route to my house. Two cops came in and asked if they could search the house. I replied, “Sure, I have looked everywhere in case he snuck back in somehow, and we have had a neighbor who does searches for the police over to look already, but the more eyes the better.” At this point, we have most of our street looking for him with phone calls out to all of the friends we could think he might try to reach. When they called back in, they said another cop was on the way to our house, their commander. When he got there is when I got the phone call saying O was safe at the precinct, but he was on the way to the hospital for an exam. We were relieved, and J wanted to go be with him, but we were asked to stay at home for questioning.

They took pictures of his bruises, none of which were from us. Wrestling on a trampoline with a kid who outweighs you by 30% will do that as will falling from the lip of a bathtub he was dancing on for his sister’s giggles. As I spoke with the ER doctor, I felt his hostility towards me grow steadily less when I explained his diagnoses and medications. Even though the doctor and Child Protective Services agent believed me, we still had to wait for him to come home and find out if there will be an investigation effectively ending our ability to foster children.

Now O had no idea the ramifications of what he was doing. He started off afraid of being yelled at again for misbehaving. Then it was a fear of being yelled at for running outside, and when I didn’t chase him he worried more. Fear drove him to act and then exaggerate. When the cops said they were going to go get the other kids in his house, he was happy. It never occurred to him that did not mean they would be with him in a new home. He just did not want to be yelled at again. When we questioned him about the ordeal that night, we had to be extremely careful with the wording of questions, because he was searching to say only what he thought we wanted to hear. He was still scared to the point he would have agreed to leave our house because he felt scared there.

I know his very early childhood before us was hard, but will he always be this scared? Will he always act impulsively to better his immediate situation without understanding how others perceive his actions and the motivation for them?

If one reads the Atlantic this month, it would seem likely. The article, There’s No Such Thing as Free Will, argues our thought process is predetermined by chemicals in our brains and the neural paths signals can take. Science seems to be arguing the nature side of the nature vs. nurture is the better bet for predicting and explaining actions. I buy the science behind the article, but I think it is too static. Sure we can predict/explain a behavior or action by looking at the brains pathways, but over time are we explaining the actions or the predispositions to certain actions?

Atlantic, There’s No Such Thing as Free Will

Can we change the brain process over time? Is this self determinism or free will changing the determinism?

Having seen Ericksonian hypnotherapy work, I also question how fixed these predetermined thoughts, reactions and emotions are to given stimuli. Can we not change how our brains work? If we can decide to change these paths, then the predictive value of the determinist model would seem to fall apart. Granted, one may say the decision to change was predictable, but were the situations to allow us to do so also predictable?

Family, it does a soul good.  The next step is teaching our body to react to this truth.
Family, it does a soul good. The next step is teaching our body to react to this truth.

Raising kids who have gone through trauma but still have highly malleable brains, I have to hope the nurture model can help. Maybe I am but a part of the masses needing to be gullible, but I tend to think the brain was wired to make this choice and do this action is believable only in a specific static scenario. My brain, as it is right now, will always decide A if given a choice between A and B. However, I might train to look at both choices and sometimes choose B based on a different decision model. My thought processes are not carved in stone, and I hope my neuro paths are not either…though a bit more resistance to cuts of those paths would be nice (Sorry, bad MS joke since Multple sclerosis, which I have, means many cuts).

Could we not plausibly argue the brain paths simply predispose us to a course of action or thought at a given time under given circumstances? Can we then work to narrow the range of circumstances prompting the bad reactions and broaden the number of paths to the preferred outcome? If not, then why bother with parenting?

Side note: The highlight of my week came when I heard O tried to calm a girl in his class using what I had taught him. I have been working with him to be the candle giving a soft glow rather than an inferno burning everything to ash. It was all based on a nintendo Wii game where you have to sit perfectly still. We started saying to each other, “Be the candle, not an inferno.” Of course for me, the candle is my grandfather’s torch of my dreams.

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Two Views of Same Data on Life Expectancy

A Dog's secret to a long happy life...play hard and find a good teddy bear with whom to sleep.  Could it be that simple?
A Dog’s secret to a long happy life…play hard and find a good teddy bear with whom to sleep. Could it be that simple?

Do Numbers Lie or mislead? I suspect we just read into them what we expect “truth” to be.

When I started as a Survey Program Analyst almost 16 years ago, I remember working on some politically sensitive data. My boss said in a somewhat cynical tone, “Tell me what you want to prove, and I can find the statistic to ‘prove’ you correct.” Since then, I have enjoyed running across those statistics which can be used for either side of a disagreement as “proof.”

I was at a healthcare bazaar at my work last week where different supplier came to sell their services. There were insurance companies hoping employees would switch to their insurance or perhaps sign up for the first time. As I walked around, I watched their interest in selling to me predictably fade quickly with the mention of my MS. It was like the Soup Nazi in Seinfeld, saying “No long term care insurance for you.”

I get it. Still, I did have some interesting conversations there. It is enlightening to see how caught up in rosy narratives we become when faced with numbers that may say what we want to hear. One of the employee assistance plan workers told me the story of one of his friend being diagnosed with untreatable cancer. The doctor told him and his family to do what they can to make the patient happy because studies show “Happier sick people live longer.” The worker and family took this to mean if they can keep the patient happy he might beat the cancer. This narrative assigned to the facts of less happy people dying quicker gave them power over that truth which they would otherwise be forced to just endure.
I guess I was a Debby Downer, because I pointed out the other “obvious” to me possible explanation for the numbers. Sometimes being really sick and dying is just miserable. Perhaps some of those unhappy people were unhappy because their illness was so miserable to endure, and it was killing them whether they were happy or not? Without knowing what made the people in the study unhappy, it is hard to say why the unhappy people died quicker.

To my, ignorant of the individual facts mind, the narrative where sick unhappy people die sooner than happier ones, suggests a bleaker mindset closer to death. This seems more plausible than healing by positive thinking. I think about the symptoms I am to watch for as a JCV positive patient taking Tysabri. I am supposed to watch for down turns in my mood because they could be a harbinger of PML. Will my happiness ward off PML or is will a darker mood be a canary in the mine?
Maybe I should worry that mind so readily dismisses my mood as a cause of my body worsening. Perhaps I am already doomed.

Of course, I have few objections if my family and friends want to make me happier all the time so I can live longer. Maybe I should start an Emotional Go Fund Me and see how much positive energy is directed my way?

The happier patient population living longer could also be a result of the body having to spend less energy enduring symptoms. I know my symptoms are worse when I am stressed. Of course I also stress over increases in symptoms. I will concede it is plausible that happier patients live longer, but which is the cause and which is the effect in the relationship between happiness and long life is undetermined in my mind.

One happy bear scout
One happy bear scout

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