Category Archives: children’s therapy

Disability

What, you mean that doesn’t look like a comfy sleeping position?

Disability is relative and not a  good determinant for value.

Our family recently found ourselves in need of a new dog to be a companion to the hyper one we already had.  With our family’s make up of various medical conditions, we got excited when J saw pets with disabilities.  When we  realized they were close to it, J started combing through their dogs looking for an ideal match.  We all piled in the van and headed off to meet a one-eyed dog in need of a home.  However, the one-eyed dog was intimidated by our loud and crazy 4 kids and hyper dog.  It wasn’t going to work…but thankfully the lady who runs the place thought of another of their dogs who might match.

Ziggy had his back legs/hip hurt when he was younger, but he is such a bundle of happiness.  He loves everything and everyone.  He trots after our hyper dog or plays stationary defense when he gets tired.  He lets our two-year old lead him around.  The biggest “disability” he seems to suffer is an inability to jump.  When I talked about him to my coworker, she said, “That’s a disability? I wish my dog had that disability.”  I figure his making the most of life without being able to do something other dogs take for granted just means he belongs with us.

Last week, I had a conversation with my son about MS in my life.

O: “Do you ever wished you didn’t have MS?”

Me: “I used to wish that I didn’t have MS, but over time I have come to accept it as just a part of the hand I was dealt.  I realized getting angry about the head aches, lack of dexterity, poor memory, etc. was not really helping me.  In fact the more I focused on it, the worse I felt.  In truth, I think I hit the lottery when it comes to the hand I have been dealt to live.  I grew up with parents who cared about me.  I’ve always had enough to eat and opportunity to learn.  Now I have a beautiful wife, four kids, a good home and some dogs to keep us company.”

O: “The headaches and stuff suck though.  I wish you didn’t have it.”

Me: “At this point I think wishing things like that is about as useful as wishing I had been born with the talent to be an NFL star making millions of dollars.  Wishing to be other than I am seems to belittle so much of what I am and can do.  I am probably not going to gain fame from my singing unless you can figure out how to make me famous for how poorly I sing and dance.  My bet is you will not grow to be the tallest man in a generation.  I think there are still a ton of things you can do with your life.  Should I waste time wishing you were a giant or just appreciate you for the smart, athletic and empathetic kid that you are?”

O: “I guess that makes sense.  It’s your whole thankful for what we have bit again isn’t it?”

Me: “Yup.  Our family all came together bonded by our ability to live with medical conditions.  I can not wish too hard for us never to have had our conditions.  Without them, we might never have met, much less become a family.”

 

Share

When Logic Fails

The mind is a mystery, and sometimes it is really scary.
The mind is a mystery, and sometimes, it is really scary.

Have you ever disagreed with someone and it seems as though all logic fails to convince them the errors of their ways? Unbelievably, I am not writing about a political issue even if the logic may be the same. As we deal with A’s stomach and her growing phobias, there are times we have to take a step back from our position of frustrated parents. I am sure I have frustrated many friends and teachers through the years when I have failed to grasp their reasoning, but I wonder if I am as untouched by the logic of the learned as my daughter has shown herself to be recently.

Dealing with an 8 year old who cannot eat in a restaurant because there is a fly is annoying. Having her reduced to huddling against me for safety from the fly or crying out in fear would be somewhat comical to watch from afar. We tried everything we could think of as we pointed out how big she was compared to the fly, how the horse she had just ridden was able to shake them off, and finally how little of her food the one fly was likely to eat. It did not matter as all of these arguments are adult logic.  The dinner was a wash for her.

Then we went home and a fly followed us into the house. As A screamed not wanting to go to the bathroom where the fly went, we thought we would go insane. I promised to squash it if it came after her. I reminded her of the books about “Buzz” the fly. Still, teeth brushing had to happen at another sink, away from where she saw the fly.

It was just a fly!

At some point, we came to realize we were arguing the wrong way. We were using logic as an adult might to solve a problem. Her problem is deeper and more pervasive. We were proposing a gentle salve on an emotional wound deeper than we know. She cannot stop picking her hands, and suddenly she cannot eat hot dogs with ketchup on the bun. Those are just two of the many recent changes. Why? Who knows, but the phobia and sudden intense dislikes are difficult to resolve. I wish I knew what those emotions meant to her. It is like an emotional logic I just do not understand, and she does not have the vocabulary to express it.

What does one do when one’s own logic fails to sooth the results of a kid’s thought process?

“Dear incomprehension, it’s thanks to you I’ll be myself, in the end.” – Samuel Beckett in The Unnamable

"I'm not saying I am Wonder Woman.  I'm just saying nobody has seen me and Wonder Woman in a room together."   Well, I'll say it, "You are my Wonder(ful) Woman."
“I’m not saying I am Wonder Woman. I’m just saying nobody has seen me and Wonder Woman in a room together.”
Well, I’ll say it, “J,You are my Wonder(ful) Woman.”
Share