Category Archives: midlife crisis

Forty & Ten: Midlife Crisis Averted

Earning this felt like an accomplishment.
Earning this felt like an accomplishment.

Nobody likes to fail. Our human minds are set up to remember our failures, so why would we do something at which we are unlikely to succeed?

The better question is how are we to really know we have done all that we can if we never push ourselves to the point of failure? The problem with failure is the ease with which we see it as an end rather than a measuring stick used for future endeavors to expand our abilities. It is OK to fail so long as we have done all we could at the time.

I still love Samuel Beckett’s “Ever Tried. Ever failed. No matter. Try again. Fail Again. Fail Better.”

It is with this mindset that I set out on my attempt to run my second half marathon on a beautiful June Saturday morning at Yellowstone. I have to admit, I had many doubts about my ability to complete the race. I had not run that far in two and a half years. I had a stomach virus hit me very hard on Thursday night leaving me dealing with having shit the bed four times until finally, there was just nothing left. I had not had an MS treatment for 2 months as I continued through the washout period needed to switch meds. Finally there were the two reasons my wife gifted me with the trip in the first place: I turned forty and have had MS for ten years.

As I sat there Friday morning thinking about this list of reasons to fail, I realized these are excuses, and we all have excuses. The question is whether those should stop me from trying. I showered for the fourth time that night, drank some more water and went to bed wondering if my stomach would keep me from an item on my bucket list, seeing Old Faithful. Thankfully, my body did what it normally does to viruses; hit it with a tactical nuke. After a dreadful evening, I went downstairs and bought a Gatorade to be followed by 2 more in short order. Then I went with T, my brother in law, to continue sight seeing in Yellowstone for a third day where we got to see Old Faithful along with many of the other cool geysers, springs and pools.

Castle Geyser just keeps going and going for 25 min.  We saw it before and after Old Faithful.  I thought about it while running.
Castle Geyser just keeps going and going for 25 min. We saw it before and after Old Faithful. I thought about it while running.

On day four of our trip, I got up and ran the half marathon. I worried about whether I would be able to finish the 13-mile run at altitudes of 6,000 feet to 6,850 feet, especially when I fell twice in mile 10 because foot drop and a long run over very uneven terrain can do that to me. Still, I finished in 906th place. When I shared the results with my kids, they started to commiserate as if it was sad so many people were faster than I. I told them over 2,700 people finished the race, and I was in the top third of all finishers. I am anything but disappointed with the finish. I meant it when I started, and I mean it now. The challenge was for me to finish, not to finish faster than anyone else. Two hours and twenty-four minutes after I crossed the start line, I succeeded. It was a beautiful trip, and a great reminder that 40 & 10 are just numbers. They are just another measurement of time, and not the most meaningful ones at that.

Thank you T and J for a wonderful trip complete with great memories. I needed the break from reality, and my self esteem needed the half marathon attempt.

Thank you T for showing me around.  I would never have seen as much without you.
Thank you T for showing me around. I would never have seen as much without you.

I got a lot of great photos on the trip, and I will create a page with just those in the next few days.

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A Year of Milestones: 2015

Maybe we all need the blind to read to us, especially if they are reading to us about us. (K reading to Scarlet from a book made about Scarlet)
Maybe we all need the blind to read to us, especially if they are reading to us about us. (K reading to Scarlet from a book made about Scarlet)

I have a habit of looking back at the end of a year and taking a moment to think about what was important in the year. Often things which seemed huge at the time seem much smaller with the gentle lapping of time’s waves. Other events which seem trivial loom large as their occurrence warns of an incoming avalanche.

With that said, here are my most salient memories of 2015. I turned 40, and I realized I have had MS symptoms for 10 years. Now just having MS for 10 years doesn’t seem like that big of a deal ten years into it. However, early on when I was dealing with head aches bad enough to make me pull over to the side of the road to puke or could not hold on to a soup cup for long enough to pay for it, my ability to still maintain a full time job and help my wife raise three medically fragile children would have seemed foolishly optimistic. So here I sit at 40 years old and having had ten years with MS, and I am planning to run the Yellowstone half marathon in June. It is my way to “rage against the dying of the light.”

When I think of big events of 2015 for me and my family, the events list start with the adoption of K. She has been with us so long, the formal adoption was almost taken for granted. She has been family almost her entire life, and we take it for granted at this point. Of course that is a sign of the truth of the statement in fact as well as in law that she is family.

For other family events, it is hard to come up with one bigger than the summer family reunion in Arkansas. For me, it is still amazing to see the family bonds strong enough to pull more than 75 people together from all over the world every five years. It feels like living in a story from the fifties because I don’t see or know of many of my friends still having big family reunions. It’s an invitation to be accepted into a family group larger than our nuclear family and close friends. For our kids, how great is it to get to know they are connected to so many people of different cultures who approach things differently? Still better, the family reunion was followed by a week with just uncles, aunts. grandparents and cousins. So their personal net of connections got cast out wide and then pulled back just a little to deepen the ties a bit closer on the family tree. The whole trip was a fascinating time to renew friendships and definitely one of my favorite highlights of the year.

Continuing on the family side, I was also lucky enough to chaperone each of my two oldest on their respective scout camping trips. It may seem silly to rate nights spent laying on the cold ground as highlights, but I enjoyed the time bonding with my kids and watching their interactions with their peers. I figure I am not that far away from a time when my kids will grow apart from me and not want me hanging around. After all, the “cool” dad role has a definite expiration date. So for the time being, I will enjoy the chance to tell stories around the camp fire and laugh as other kids are now old enough to know some of the myths I draw from to craft my stories.

Happy moment of found family 2015
Happy moment of found family 2015

On my work front, 2015 was rewarding, informative and depressing all at once. The project I manage lost 6 of it’s 4 employees during the most hectic part of the schedule before publication. No that is not a misprint or a mistake. We lost the replacements of 2 of the spots as well. When we published in September, there was another project manager and I along with two employees who began April 1st and 2nd. When I say rewarding, it is because we accomplished what most outside our group said could not be done for months leading up to publication. I was lucky to get good employees who quickly grasped what I was trying to teach and then were able to move forward. The depressing part was being given a rating of barely passable performance by new management who never understood what was involved in meeting our publication dates. So they praised us in public for accomplishing what most thought could not be done, and then in private they rated us as low as they could without having to justify the ratings. As a kicker, the other project manager was removed from our area in the weeks following publication. The upside is the rating has reenforced in my mind the need for cultivating an ability to appreciate accomplishments regardless of others’ opinions. I teach it to my kids, and this is just an example where I need to live what I teach.

Thankfully, if my job threatened to make me question my abilities to think critically to work towards a goal, my work with the American Board of Internal Medicine (ABIM) as patient’s advocate has been rewarding. It is fascinating for me to learn how they determine what a doctor should need to know after they have been practicing medicine for years. ABIM then gave me two great recognitions of my input. They extended my term of service on the board as my initial term was expiring, and they asked me to help them on another as they set up a conference promoting patient centered medicine. Not much makes me feel more appreciated than being asked to continue and then asked to do more.

Still, the highlight from a feeling of possibly having an impact on healthcare came when I was asked on a Wednesday afternoon in October if I would present at the FDA on the following Monday. The kicker was I had to have a presentation to them by Friday. Thankfully, the topic of the presentation was REMS: Understanding and Evaluating their Impact on the Health care Delivery System and Patient Access. It was an opportunity for me to talk about risk management from a patient’s perspective because I take a drug with a chance to leave me with a brain infection likely to cripple or kill me if I get it. Talking about numbers and what they mean is the type of conversation I frequently lead at work as we review data, and I had just written about our inability to really conceptualize large numbers. So I wrote up the presentation on Thursday night and gave a quick run through with my coworkers on Friday before submitting. On Monday, I gave my presentation and actually had some applause which shocked me. Having people come up to me for the remaining 2 days referring to me with “you’re the numbers guy right?” was a great shot in the arm. I was even contacted months later by another patient advocate who watched my testimony and was impressed enough to re-watch it before presenting to the FDA at the request of the MS Society. Giving that presentation was a high water mark for feeling my thoughts on our healthcare are respected even if I think they are often given more weight than they deserve.

My theme for this past good year could best be stated, “It feels good to be valued.”

There is a some times shy super hero inside us all. This is one of my favorite pictures from 2015.
There is a some times shy super hero inside us all. This is one of my favorite pictures from 2015.
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